Well, so often tragic news strikes like a bolt out of a clear blue sky. Takes your breath away under a huge weight of sadness.
It is a good thing to treat everyone with love and charity.
We were at UCSF for one of Aidan’s shorter stays. I was watching kids play in the very tiny 6th floor outside area just across from the PICU. Willa had been on the phone for over 1/2 hour. I was getting annoyed. Willa finished the phone conversation, came up to me and simply said, “Kevin’s dead.” Annoyance went away – lesson eternally learned. She could have talked to Kevin’s mom for hours/days and it’d be fine.
Kevin had been going into liver failure and he needed a liver transplant to survive. He was did not live in our area. We lucked out so much by having Dr. Rosenthal as Aidan’s doctor who really went to bat for him. Kevin was what is described as mentally delayed. His doctors did not want to do transplant because of this. He died. Kevin was 8 years old.
It bothers me to this day that so much of our society values people by what they can accomplish rather than what they are. The more powerless a person is the more they deserve to be defended.
I’m thinking about this today because it was 9 years ago on this date that Ryan Barrett died. It doesn’t seem that long ago. The memory and hurt returns again every year.
He was a sweet boy who was autistic. I remember the call for urgent prayers when he went missing. I remember that sad update when he was found. He had had a seizure near water when alone. I can picture it. Here comes those tears again….